Date Range
Date Range
Date Range
A forum moderated by Beyond Batten Disease Foundation. Sharon Terry at TedMed 2016. B0bby branham on Rare is NOT an excuse.
Dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We are a science-based advocacy organization that works to bring lifesaving treatments to the 30 million Americans with rare diseases. We focus on educating and activating the patient community to ensure they are heard by policy makers in government and by industry developing the treatments. Affecting 1 in 10 Americans. Have no FDA approved treatments. Sign Up for Our Newsletter.
35th Annual NorthBay Guild Golf Classic. Saturday, May 19, 2018. Harbison Event Center, Nut Tree.
Wednesday, April 4, 2018. How much do you want to make out of your life? No, not how much money. Are you someone who always wants to do better? Do you find yourself reaching for the stars? Is there a limit? Do you keep going just because you want things better for yourself, or do you have high expectations for your family, friends, and even your community? How much achievement is enough? .
The Recovery 50 on Armed Forces Day! Had anyone told me 17 months ago that I would be running 50 miles on Armed Forces Day last weekend I would have questioned their sanity. Not as much as I had hoped to r.
Quest for Balance and Optimal Health. Wednesday, January 25, 2012. I am sure she will be back with us post Boston but we might need to put her through some initiation first. More to follow on the skiing experience. Monday, January 23, 2012.
7th Annual Run for Roch Saturday July 30, 2011. Washington and enjoy the exhilarating, panoramic view from Grandview Avenue. You know you want to! Or on site the day of the race.
ROSELLE RUN FOR THE ROSES 5K. Sunday June 4th, 2017 at 8AM. 23rd Annual Sternberg Lighting Run for the Roses. Individuals for the 5k, family rate or the 5k and team rate for the 5k and the . 400 for 1st prize,. There are 3 classifications for this team challenge.